Category Archives: Health

What is new in the field of Health. Trending topics, and cutting edge research in the are of Health. Press Releases that give us updates on Health.

This Simple Device Will Help You Avoid Germs


TouchClip touch tool

Daniel Sheinfeld is an architect turned jewelry designer that found a solution to save lives with style. He designed a novel solution to help avoid contact with high-touch surfaces like public door handles.

Daniel is a successful jeweler designer currently living off the grid in a remote Hawaiian island. He exhibits his pieces in luxury jewelry stores, from Hawaii to New York City; even in museums.

When the pandemic hit he suddenly found himself with lots of time to be creative. As any creative mind, Daniel started watching his surroundings for inspiration. He noticed his wife opening a door using a key to avoid touching the handle. And that got him thinking!

Two hours later he was already 3D printing v1 of his solution to the problem. After multiple iterations in the span of 2 days (and long nights), the TouchClip was born. And after 3 more days it was being manufactured in Bali.

The TouchClip is a hand-crafted tool designed to safely open doors, press buttons (think gas station & elevators) and open boxes. Yes, all those online orders made since the pandemic started. The TouchClip attaches to any key ring so It’s always handy. And the best thing is that it’s made from brass, a copper alloy that’s antimicrobial.

It didn’t take long for the TouchClip to become a viral sensation. Today Daniel is fulfilling hundreds of orders from his online shop at BuyTouchClip.com.

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Market America | SHOP.COM Says No Gym? No Problem! 5 Ways to Stay Fit When You’re Social Distancing


No Gym? No Problem! 5 Ways to Stay Fit When You’re Social Distancing

No matter your relationship with exercise, social distancing will eventually make us all a little stir-crazy. With public fitness centers and gyms still closed or slowly reopening, we are all in need of ways to stay active while we keep our distance from the public. Here are five ways to develop a “quarantine exercise” plan to make sure you’re staying fit!

1. Stick to your routine First things first, being locked up at home can make you want to deter from your normal work week routine but that’s the last thing you need when trying to stay active. Okay. So it’s been a few months and you have traded in your business casual for sweats, leggings or shorts and whatever t-shirt is clean. You can still get back to your regular workday routine by making sure to get up at the same time every day and be mindful of your habits. Take regular breaks from your work or Netflix binging and factor in 30 minutes a day dedicated to being active. Whether it’s going on a walk or following an at home workout, make sure you’re moving!

2. Try an at-home workout Fitness gurus have noticed that we’re all in the same boat and are flooding the internet with more at home workouts. There are thousands, if not more, of free at home workout videos on the internet that require little to no equipment. No matter your workout type preference such as yoga, Pilates, body weight exercises, and more, there’s an online option for you. Check out this list of online platforms to browse that has every workout type covered or peruse these diet and exercise programs that you can download for free!

3. Go for a walk As we mentioned, there most likely will come a time when you’re itching to leave the house. Going for a walk can not only help you feel less stir crazy, but it’s also a great way to get your exercise in. If you’re unsure on how to practice social distancing outside of your home, this article will answer your questions. For peace of mind, reach out to your primary healthcare physician to determine what you should be mindful of and what length of time walking is best suited for your overall wellbeing.

4. High-Intensity Interval Training If you’ve never tried it before, HIIT workouts are a great way to get in a quick and effective workout anywhere. You can try it in the comfort of your home, or outside on a bright and sunny day. Check out this list of 3 Quick HIIT Workouts for Beginners for some inspiration.

5. Try Healthy Meals You’ve probably heard the saying “Abs are made in the kitchen.” It’s important to remember that while staying active helps, eating healthy is a guaranteed way to maintain your fitness goals. Check out these free healthy recipes or this list of healthy groceries to have in your pantry during quarantine.

This article is provided by Market America | SHOP.COM, a product brokerage and Internet marketing company that specializes in One-to-One-Marketing.

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The Fibroid Foundation Forms Alliances with the LPGA Amateur Golf Association and Springboard Enterprises


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“Finding dynamic ways to elevate the conversation on women’s health is so important.”- Sateria Venable, Founder & CEO

The Fibroid Foundation, a patient-founded nonprofit announces alliances with the LPGA Women’s Network, LPGA Amateur Golf Association and Springboard Enterprise’s Women’s Health Innovation Coalition. Sateria Venable, Founder of The Fibroid Foundation emphasized the significance of these alliances by saying, “Finding dynamic ways to elevate the conversation on women’s health is so important. The LPGA and Springboard are innovative organizations committed to women’s well-being.”

The LPGA Women’s Network and the LPGA Amateur Golf Association:

The LPGA Women’s Network and the LPGA Amateur Golf Association alliance elevates the conversation on women’s health and the need for self-care. The Fibroid Foundation chapters are aligning with the LPGA Women’s Network chapters across the U.S.

“I wanted to partner with the LPGA for many reasons,” said Fibroid Foundation Founder and CEO Sateria Venable. “First, of course, I love golf! It helps with spinal alignment, pelvic flexibility, and exercise—all very important for fibroid patients.”

The first part of the alliance began on April 28th as an informative webinar exclusive to the members of the LPGA Amateur Golf Association, outlining the benefits golf can provide for women’s health as well as providing information about fibroids, which affects the majority of women at some point in their lives. Vice President of LPGA Amateur Golf Association Mary-Lee Cobick stated, “We are proud to align with the Fibroid Foundation to support women’s health through education, informational services, and showing health benefits golf can provide.”

Continuing with the Fibroid Foundation’s efforts, the LPGA Women’s Network and LPGA Amateur Golf Association will provide advice and inspiration for new female golfers to highlight the health benefits of the game and in turn promote golf to members of the Fibroid Foundation through #inviteHER Experiences, LPGA Tournaments, and Women’s Leadership days hosted across the country.

Springboard Enterprises Women’s Health Innovation Coalition:

The Fibroid Foundation joins a coalition of innovative women’s health organizations collaborating to spur investment in women’s health innovation (https://www.womens.health/).

The coalition represents seven key sectors of women’s health – Autoimmune Diseases, Oncology, Bone Health, Gynecological Health, Reproductive Health, Heart Health, Cognitive and Brain Health. The Fibroid Foundation brings expertise in both gynecologic and reproductive health advocacy to this impressive collaborative effort.

Coalition members include: 2020 Mom, American Autoimmune Related Diseases Association, Inc.(AARDA), American Bone Health, Vermillion, Inc. / ASPiRA Laboratories, Avestria Ventures, BloomerTech, Davis Wright Tremaine LLC– Project W, Elidah, Elix, FEMselect, Femtech Collective, Femtech Focus, Femtech Insider, Future of Femtech, G2G Consulting, Gals bio Ltd, Gennev, Healthy Women, HLTH Foundation, Hormone Health Network, Life Whisperer, Madorra, Mahmee, Maven, Mymee, Pandia Health, Presagen, Pulse, Q2Q, RiskLD, Spark Solutions for Growth, SteelSky Ventures, The Fibroid Foundation, Univfy, VentriNova, Women of Wearables, and Women’s Health Innovation Summit.

Click here to Partner with The Fibroid Foundation!

About The Fibroid Foundation

The Fibroid Foundation is an organization founded by fibroid patient Sateria Venable in 2013. Our mission is to provide education, to advocate, to research, to legislate, and to provide product development consulting. We are 19 chapters strong and growing. Our readership is 26,000 women globally.

We are published in Obstetrics and Gynecology and Fertility and Sterility.

July is Fibroid Awareness Month. Our 2020 July focus is Health Equity.

One woman at a time, we are showing the world that we are empowered, and that we are driven to change our story!

Fibroid Statistics:

“Approximately 70% of women will have fibroids by the age of 50.

While not all women with fibroids have symptoms, the 30-50% who are symptomatic tend to

have multiple symptoms which can include abnormal uterine bleeding, pain, infertility, recurrent

pregnancy loss, urinary symptoms, and bloating. The prevalence and morbidity of these tumors

combined, result in fibroids being the leading cause of hysterectomy in the USA.” – Dr. Erica Marsh

Tags:

#FibroidFoundation

#SateriaVenable

#WomensHealth

#HealthEquity

#HealthDisparities

#LPGAWomensNetwork

#LPGAAmateurs

#LPGA

#Springboard

#UterineFibroids

#Fibroids

#PatientAdvocate

#Nonprofit

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‘Healthcare from the Trenches’ by Dr. Alejandro Badia


Healthcare from the Trenches by Dr. Alejandro Badia

Dr. Badia’s book exposes systematic barriers that have led to skyrocketing health costs, lack of patient access and inefficient delivery of care.

Dr. Alejandro Badia’s book Healthcare from the Trenches, published today, exposes systematic barriers that have led to “skyrocketing health costs, lack of patient access and inefficient delivery of care” and comes at a time when the COVID-19 pandemic is further exacerbating weaknesses in the US Healthcare System.

Dr. Badia calls his book “an insider’s account of the complex barriers of U.S. health care from the providers’ and patients’ perspective.”

According to Dr. Badia, “People are challenged because of a flawed system. Staff at insurance companies with no medical training dictate what constitutes reimbursable care. The result is that their interference disrupts the doctor-patient relationship, delays or prevents delivery of care and presents obstacles to new approaches that would improve patient outcomes and reduce costs.”

Dr. Badia is the founder and chief medical officer of the Florida-based OrthoNOW®, a pioneering network of single-specialty, immediate orthopedic care centers in South Florida. Dr. Badia also treats patients hand and upper limb issues at the Doral based (Miami) Badia Hand to Shoulder Center, also a one-stop shop outpatient facility.

“Since the implementation of the [U.S.] Affordable Care Act, health care in America has become an even greater bureaucratic nightmare than before,” Dr. Badia states. “What started as incremental interference in the relationship between doctor and patient with the passage of the Medicare Act of 1965 is now an impenetrable barrier made up of governmental and health care insurance industry red tape. The result is higher costs and greater inefficiencies.”

Dr. Badia points out that experts agree with his perspective. An article in a 2017 issue of the Journal of Health Informatics & Management refers to the nation’s health care system as being in “crisis” and indicates the “U.S. health care system consumes far more resources to produce the same or lesser [patient] outcomes as compared to health care systems elsewhere.” The author of the report goes on to say that “powerful interest groups,” including insurance and pharmaceutical companies, hospital organizations, medical equipment firms and information technology businesses have “rigged” the system, sending some 2,400 health care industry representatives to Washington, D.C. to lobby Congressmen.

Early last year (2019), results of a Gallup poll showed 70 percent of Americans believe the U.S. health care system has “major problems” or is in crisis.

“The current COVID-19 pandemic has only inflamed the problems. More people are unemployed and find themselves without employer-financed health insurance, according to the Urban Institute. A May 5, 2020 online New York Magazine article reports survey numbers indicating 14 percent of all U.S. adults would avoid treatment if they developed coronavirus symptoms because of health cost issues. The pandemic is further taxing our doctors, health care system – and our economy,” Dr. Badia adds. “Despite the political debates and media coverage on health care policy and reform, there remains little or no feedback from the people in the trenches – the physicians and other health care professionals who provide care to the patients. That’s why I wrote the book. My hope is that a broader discussion of the issues can be a catalyst to positive change.”

More information is available about Healthcare from the Trenches here: https://www.drbadia.com/healthcare-from-the-trenches/

Watch Dr. Badia on the Be Mspired Podcast with Miguel Global and offers a from “the trenches” perspective on the healthcare crisis

https://www.drbadia.com/news/the-us-healthcare-crisis-covid-19-be-mspired-podcast-full-video/

Alejandro Badia, MD, FACS, internationally renowned hand and upper-limb surgeon and founder of Badia Hand to Shoulder Center and OrthoNOW®, a walk-in orthopedic care clinic. He is a member of the American Society for Surgery of the Hand, American Association for Hand Surgery and the American Academy of Orthopedic Surgeons and an honorary member of many international professional hand societies. Dr. Badia specializes in treating all problems related to the hand and upper extremities, including trauma, sports injury, joint reconstruction, nerve injuries and arthroscopic surgeries. http://www.orthonowcare.com and http://www.drbadia.com

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Access announced the release of “Impression,” the latest version of its paperless, web-based eForms solution


“It is our goal to help hospitals serve their communities as safely and efficiently as possible. To that end, we created Impression to serve the immediate telehealth and pre-registration needs of hospitals,” said Access founder and CEO Tim Elliott.

Access announces the release of “Impression,” the latest version of its paperless, web-based eForms solution to aid hospitals in their pursuit of a pre-registration solution as part of a total telehealth strategy. Due to the COVID-19 pandemic, hospitals are rapidly adopting telehealth solutions and searching for new ways to ensure patient and staff safety. Thanks to its seamless user interface integration, Impression feels like a native part of a hospital’s EHR. Hospital users simply select which forms they wish to extend to a patient in advance of their appointment as part of the pre-registration process, and the patient can then complete and electronically sign their forms anywhere. When they arrive for their appointment, patients can spend as little time as possible in the hospital’s actual waiting room because their paperwork has already been completed.

“It is our goal to help hospitals serve their communities as safely and efficiently as possible. To that end, we created Impression to serve the immediate telehealth and pre-registration needs of hospitals,” said Access founder and CEO Tim Elliott. “It is important for us to help hospitals better serve their communities by meeting patients where they are and using technology to promote efficiency, safety, and a positive patient experience.”

Impression builds upon the Access legacy of being the number one electronic forms solution for hospitals by providing:


  • Seamless EHR integration for end-user adoption
  • A secure pathway to extend eForms to patients in advance of their appointment
  • Patients complete and sign all documents remotely
  • Electronically completed forms that are sent straight into the patient’s chart in the EHR
  • A safer and faster contactless check-in process

Anyone wishing to see a demo of Impression or learn more about Access’s other paperless solutions can visit https://www.accessefm.com/contact.

About Access

For more than 15 years, Access has developed electronic forms management solutions that eliminate the unnecessary expense, risk, and inefficiency of paper forms. Our 100-percent paperless technology enables organizations in any industry to capture, manage, sign, and share forms data without printing or scanning. Learn more at http://www.accessefm.com

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Kyowa Hakko’s American-Made L-Glutamine Ingredient Featured in New Healthy Origins Product


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With a mission to provide consumers with “healthy value from reliable origins,” Healthy Origins introduces its new L-Glutamine dietary supplement product, formulated exclusively with Kyowa Hakko’s American-made, researched-backed L-Glutamine ingredient.

“Glutamine is a conditionally indispensable amino acid and plays a pivotal role in gut health, immune function and minimizing muscle breakdown,” explains Elyse Lovett, MS, MBA, Senior Marketing Manager at Kyowa Hakko U.S.A. Inc. L-Glutamine is produced naturally in the body. However, during times of stress or rigorous exercise, natural levels of L-Glutamine may be reduced. “For this reason,” says Lovett, “many athletes choose to add supplemental L-Glutamine to their diet and exercise regimen. L-Glutamine may help to optimize athletic performance, support muscle health, minimize muscle breakdown and support healthy immune cell function*.”

In choosing ingredients for their high-quality, yet affordable, dietary supplements, Matthew Eby, Owner of Healthy Origins remarks, “We start by sourcing the highest quality active ingredients from the most reputable suppliers in the world. The majority of Healthy Origins products are manufactured using patented, branded ingredients supported by years of scientific research and clinical studies.”

As the leading international health ingredient manufacturer of pharmaceuticals, nutraceuticals and food products worldwide, Kyowa Hakko’s, non-GMO, allergen-free, and pure L-Glutamine ingredient seamlessly aligns with these standards. Better yet, the Kyowa Quality L-Glutamine is made in the USA, ensuring complete quality and purity control, no transportation or custom delays, and is more cost-efficient, with no tariffs or shipping hassles.

“Here at Kyowa Hakko USA, we draw on 60-years of pioneering innovation to produce our premium quality Glutamine,” comments Lovett, “We make our amino acids right here in the USA. It all starts in our facility at Cape Girardeau, Missouri. We rely on our advanced fermentation and purification technology to produce our Glutamine.”

Kyowa Hakko is the first to develop industrial fermentation processes to produce amino acids. The patented fermentation process yields a pure, high quality form of L-Glutamine, without added chemicals. This novel ingredient is part of Kyowa Hakko’s extensive line of amino acids and related compounds, which exceed commodity ingredients in purity, quality and safety, and are distinguished from mainstream commodity ingredients by the Kyowa Quality logo.

“Having our L-Glutamine chosen as the exclusive ingredient in this new Healthy Origins product is a huge win for us,” remarks Lovett, “We couldn’t be more excited to further our mission of providing healthy solutions to improve quality of life through the help of this reputable brand.”

Healthy Origins American-Made L-Glutamine is available for purchase at http://www.healthyorigins.com. Media interested in setting up an interview with a Kyowa Hakko, please contact Sara White at sara@adinnyc.com or 914.621.1323.

*These statements have not been evaluated by the Food and Drug Administration. This product is not intended to diagnose, treat, cure or prevent any disease.

About Kyowa Hakko USA:

Kyowa Hakko USA is the North & South American office for Kyowa Hakko Bio Co. Ltd., an international health ingredients manufacturer and world leader in the development,

manufacturing, and marketing of pharmaceuticals, nutraceuticals and food products. For more information visit Kyowa-USA.com.

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HALCO Enables its Partners to Produce PPE and Workplace Safety Products


Halco

Halco USA Logo

“We are using that spirit of innovation, in cooperation with many of our customers and partners, to solve problems posed by the crisis and the “new normal” that lies ahead”, commented Guy Fussell (Halco USA – General Manager)

– HALCO Enables its Partners to Produce PPE and Workplace Safety Products –

Collaborative efforts focus on the post-pandemic market demand for infection control solutions.

HALCO USA, a leading supplier of Hook and Loop Fastening systems has mobilized its operation and engaged its partners to address the growing demand for Personal Protective Equipment (PPE) and workplace safety products. As the COVID-19 crisis transitions from a national emergency to a post-pandemic recovery, businesses and non-emergency healthcare providers are looking for solutions to protect their employees, customers and patients.

Read a full description of the company’s COVID-19 response.

From the early days of the crisis, HALCO has been working with business partners in medical, industrial, exhibit and print segments to rapidly design and deliver PPE solutions to frontline workers and essential businesses.

Insulfab, a premier converter of foams, fiberglass and plastics based in Coppell, Texas, partnered with HALCO to source essential components to fabricate disposable face shields for front line and essential workers.

HALCO partnered with Zatkoff Seals and Packaging in Farmington Hills, Michigan to produce COVID-19 face shields. Zatkoff sourced many components for the face shield including, brow foam pads, elastic bands, clear PETG/APET surgical grade plastic with hook and a loop fastening systems supplied by HALCO.

HALCO has also enabled partners in the tradeshow, exhibit, large format print and retail display industries to pivot from areas hit hard by the shutdown and focus on infection control solutions that allow businesses to safely resume operations during the recovery and into the future.

HALCO is able to respond quickly and provide customers with re-closeable fastening systems and flexible converting services to help them meet this new demand with:

  • A large Inventory reserve to meet a sudden spike in demand
  • Fast cut-to-length service for sew-on and adhesive backed fasteners
  • Rotary die cutting and lamination for applications requiring specific shapes and adhesives
  • Application expertise for new projects including product suitability, life of product, adhesives and custom packaging


“Our company is both innovative and adaptive”, commented Guy Fussell, Managing Director of HALCO USA. “We are using that spirit of innovation, in cooperation with many of our customers and partners, to solve problems posed by the crisis and the “new normal” that lies ahead.”

Typical PPE and workplace safety products manufactured by HALCO partners include:

  • Face masks and N95 respirators
  • Eye and face shields for full face protection
  • Sneeze guards and protective barriers
  • Gowns and protective clothing
  • Barriers, curtains and temporary shelters


Halco works with each partner to design the ideal fastening solution, source the materials, provide precision converting and fabricating services, and manage inventory levels to ensure a steady supply.

“We remain fully committed to our traditional products and areas of industry focus,” noted Guy Fussell. “At the same time, our COVID-19 solutions will meet a new demand for PPE while helping partners to restore revenue sources impacted by the crisis. We are agile enough to cover all the bases.”

To learn more about HALCO’s COVID-19 response, or to explore a potential PPE partnership, visit the company’s website resource page: https://www.halcousa.com/covid-19-response/

ABOUT HALCO USA

HALCO provides state-of-the-art fastening solutions based on Hook and Loop technology, industrial adhesives and specialty fastening products. We use advanced technology and ISO 9001 certified methodologies to deliver superior converting services. Our personalized service brings together products, packaging, pricing, engineering, testing, and inventory programs into a total solution. HALCO products can be found in global brands like Tesla, Boeing, and Caterpillar, and we supply printers and sewing contractors across the country with fastening systems that deliver unmatched value. For more information visit: https://www.halcousa.com/

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Windsor Gardens Care Center of Fullerton Identified as Top Performer by the American College of Health Care Administrators (ACHCA)


Brian Rougeux, recipient of Eli Pick Facility Leadership Award

“After 30 years in the long-term care industry, I am humbled to receive the Eli Pick Facility Leadership Award,” says Rougeux. “I would like to thank our amazing staff for all they contribute that made receiving this award possible.”

Windsor Gardens Care Center of Fullerton, a skilled nursing and rehabilitation center located in Fullerton, CA, announced today that its’ administrator, Brian Rougeux, has been awarded the Eli Pick Facility Leadership Award by the American College of Health Care Administrators (ACHCA).

The Eli Pick Facility Leadership Award was established in 2008 by one of ACHCA’s leaders, the late Eli Pick, to recognize the administrators of top-performing skilled nursing facilities (SNFs). Based on the premise that facility excellence reflects leadership excellence, this award recognizes the administrator of record who provided such leadership for the full 2019 calendar year.

Eligibility for this award is based on three years of SNF survey data, including the Health, Fire Safety, and Complaint Surveys, as well as top quartile performance on designated Quality Measures. The criteria also include at least an 80% or greater facility occupancy and a three-year avoidance of a Special Focus Facility status. Fewer than 7% of facilities nationwide qualify for the award.

“After 30 years in the long-term care industry, I am humbled to receive the Eli Pick Facility Leadership Award,” says Rougeux. “However, while I am honored to be recognized by the ACHCA for my leadership, it takes a hard-working dedicated team to provide the level of care for which Windsor Fullerton has been recognized. I would like to thank our amazing staff for all they contribute that made receiving this award possible.”

Windsor Fullerton and Brian Rougeux are scheduled to receive the award at the ACHCA’s Annual Convocation and Exposition in New Orleans, Louisiana scheduled for August 30-September 2, 2020.

About Windsor:

Windsor Fullerton is a skilled nursing facility and rehabilitation center associated with Windsor healthcare centers. Windsor provides short-term and long-term healthcare, rehabilitation services and assisted living communities throughout California and Arizona. Windsor employs professionals that provide nursing, therapeutic, sub-acute and rehabilitation care to over 4,000 patients daily.

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Incubator Announces Highly-Anticipated Beta Launch of “FreeFromCovid” Application


Works with Contact Tracing Apps

FreeFromCOVID

The FreeFromCOVID application provides an easy, secure, and private means to allow people to prove that their legitimate contact tracing application does not reveal any relevant contacts with COVID-19 carriers.

INCUBATOR LLC, a Chicago based tech company bringing advanced automation and machine-learning products to the customer authentication, legal, international food, and other industries, announced today the “beta” launch of FreeFromCOVID, an application that encourages people to use “contact tracing” apps.

“We received a large number of inquiries regarding this application, and are excited to make FreeFromCOVID available to the public in this ‘beta’ release,” said Holly Urban, the CEO and co-founder of INCUBATOR LLC.

The FreeFromCOVID application works with contact tracing apps to promote their use and provide for their interstate and international viability. Although the FreeFromCOVID application was developed in response to the current COVID-19 or “Coronavirus” pandemic, it could easily be updated and used for future pandemics.

As certain areas in the world emerged from “lockdown” or “shelter in place,” reports indicate that people are still reluctant to leave the house and business is still suffering, and even that the virus is surging back in some areas.

Many countries around the world are increasing their rates of COVID-19 testing. In addition, various contact tracing applications are now implemented or soon will be implemented — in various states in the United States, and in various countries internationally — to help track and reduce the spread of COVID-19.

With this multitude of high-quality contact tracing applications, it will be difficult for third parties to know which of these applications might be legitimate and capable of being trusted, especially across borders and across continents. In fact, it is likely that “fake” or “dummy” applications will surface, causing considerable confusion and continuing distrust.

The FreeFromCOVID application provides an easy, secure, and private means to allow people to prove that their legitimate contact tracing application does not reveal any relevant contacts with COVID-19 carriers. The FreeFromCOVID app prioritizes: (1) privacy and security; (2) speed and reliability; (3) decentralization, with no single authority or point of failure; (4) difficulty to falsify or forge; (5) ease and simplicity of use; (6) fast implementation internationally and across borders; and (7) low cost and widely available means of use.

To develop this application, the INCUBATOR LLC company led an international consortium of software development teams, including ITCraft (Germany), Incora (Ukraine), and ClickIt Smart Technologies (Mexico). Each company contributed various expertise to the project, and worked together in building the application. The FreeFromCOVID app is free, and open-sourced to governments under the Mozilla Public License Version 2.0.

Incubator issued a white paper regarding the project that is available for download on the project website. For more information, or to inquiry about opportunities to join in the project, companies are invited to use the form on the FreeFromCOVID website.

About INCUBATOR: Incubator LLC is a Chicago-based digital technologies development company focusing on business-to-business applications in various verticals. PATENTS PENDING. The “Incubator” logo, and all product names and logos, are trademarks owned by Incubator LLC and its affiliates. All rights reserved.

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As Many AS 90% Unaware They Have HHT


Cure HHT, the only patient advocacy organization in the world funding research, awareness and education for the rare genetic disease HHT for patients, their families and the medical/scientific community issues COVID-19 cautions to HHT Patients, and works to increase Awareness of HHT for Global Awareness Day June 23rd 2020.

Most Common Symptom is Frequent Nose Bleeds

Ninety percent of people with HHT (Hereditary Hemorrhagic Telangiectasia) are unaware they have the rare disease that affects an estimated 1.4 million people of all races and backgrounds globally. This genetic disorder of the blood vessels affects 1 in 5,000 people, and is as common as Cystic Fibrosis, yet receives far less funding for research. HHT creates abnormalities in blood vessels, called telangiectasias, which are fragile and susceptible to rupture and bleeding, and untreated may result in lung and brain hemorrhage, stroke, heart failure and death. The most common symptom of HHT is frequent and severe nose bleeds, often dismissed. One HHT diagnosis means there is a whole family of potentially affected people spanning generations. There is, as yet, no cure, but existing treatments can be effective if HHT is diagnosed early.

Cure HHT, a non-profit organization headquartered in Maryland, is the only patient advocacy organization in the world funding research, awareness and education for HHT patients, their families and the medical/scientific community. Since its first HHT Center of Excellence was opened at the Yale University School of Medicine in 1991, Cure HHT has dramatically expanded awareness, diagnosis and access to quality healthcare for HHT patients, and now has 26 Centers of Excellence operating in the United States and Canada headed by leading HHT physicians and specialists. https://curehht.org

HHT’s blood vessel abnormalities, especially in the lungs, pose an added risk for individuals affected by COVID-19. It can also impact those HHT patients receiving medications that increase the risk for blood clot formation complications, referred to as COVID coagulopathy, with an incidence reported to be as high as 27%.

Throughout the month of June, and especially on Global Awareness Day June 23rd, Cure HHT encourages wider Awareness of the disease so that more people will be diagnosed in a timely way, and receive treatment before their situation becomes dire. “This is a huge part of our mission,” comments Cure HHT Executive Director, Marianne S. Clancy. “Awareness of HHT is the basis of everything that we do. It is critical to alerting hundreds of thousands of people globally that they may have this disease, and may be passing it on to their children. From that Awareness comes increased diagnosis, improved treatments and more funding for research to find a cure.”

In addition to hosting the only international scientific conferences on HHT, Cure HHT provides seed grants for research, education for health care professionals, and advocacy for increased funding which it has helped leverage through the CDC (Centers for Disease Control), the NIH (National Institutes of Health, the DOD (Department of Defense) and other sources.

This year, Cure HHT received a two-year capacity-building grant from the Chan-Zuckerberg Initiatives’ Rare As One Project to develop a patient-led research network, which will accelerate its mission to find new treatments and a cure for the disease. Founded by Dr. Priscilla Chan and Mark Zuckerberg in 2015, CZI is a new kind of philanthropy that’s leveraging technology to help solve some of the world’s toughest challenges.

Also, Cure HHT has launched an expanded and revamped online Resource Library which is a free, centralized hub for patient and medical provider information. The user-friendly Resource Library offers separate gateways for Patients and Providers, and facilitates the search for critical information with a “Quick Topic Access” button leading viewers to information on a wide range of topics including genetics, mental health, pregnancy and women’s issues, and the impact of the disease on the brain, heart, liver, lungs and more. Users can seamlessly navigate between topic areas, or use the improved search to locate the specific information they are seeking. It is the most comprehensive free online source of information on HHT in the world.

Editor’s Notes:

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