The Beryl Institute Offers Recommendations to Elevate Experience for those Living with Dementia


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Reinforcing its commitment to elevate the human experience in healthcare, The Beryl Institute releases a new white paper, Elevating Experience for those Living with Dementia.

Reinforcing its commitment to elevate the human experience in healthcare, The Beryl Institute releases a new white paper, Elevating Experience for those Living with Dementia. The paper explains the statistical significance of dementia, heightens awareness of the lived experience following a diagnosis, shares the potential impact of person-directed dementia care and provides opportunities for action to elevate the experience of those learning to live well with the condition.

Voices and perspectives contributing to this work include experts in the field, practitioners who provide care each day, people living with dementia and care partners who support those on the dementia journey. Through their reflections, the paper explores societal misperceptions and stigmas that point to an urgent need for a shift in the paradigm that will elevate the human experience for those living with dementia.

Opportunities for action in addressing experience for those living with dementia are focused on three key recommendations:

  • Place human rights and personhood at the forefront of care for those living with dementia
  • Support societal changes aimed at improving the experience for people living with dementia
  • Apply a person-directed approach to caregiving and support systems

The paper was guided by a team of thought leaders in aging services including Penny Cook, President and CEO of The Pioneer Network, Tammy Marshall, Chief Experience Officer, Thrive Senior Living, Dr. Allen Power, Schlegel Chair in Aging and Dementia Innovation at the Schlegel-University of Waterloo Research Institute for Aging and Jill Vitale-Aussem, President and CEO of The Eden Alternative.

“The foundation for all we do at The Beryl Institute is grounded in collaboration and connection with experts and champions in all reaches of the healthcare landscape,” said Jason A. Wolf, PhD, CPXP, President, The Beryl Institute. “In bringing together these leading voices and visionaries working to address dementia, long-term care and healthcare overall, we have all learned more, gained new insights and established critical connections that ensure a conversation on the human experience extends across healthcare for all it serves.”

To download the white paper, visit http://www.theberylinstitute.org/?page=WhitePapers.

About The Beryl Institute:

The Beryl Institute is the global community of practice committed to elevating the human experience in healthcare. We believe human experience is grounded in experiences of patients & families, those who work in healthcare and the communities they serve.

We define the patient experience as the sum of all interactions, shaped by an organization’s culture, that influence patient perceptions across the continuum of care.

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