Success in rare disease clinical trial enrollment and retention necessitates expanded access, more inclusive outreach strategies, and technology-driven solutions.

TORONTO (PRWEB)
November 16, 2020

When targeting rare genetic diseases for clinical trials or research, patient engagement is critical. In this webinar, join a panel of experts who will address proven and emerging ways to empower a diverse group of patients as critical stakeholders in clinical trials, leading to improved participation and more meaningful outcomes.

There are more than 2,500 gene-based therapies in the biotech pipeline, many of which are targeted for rare diseases. Clinical trials for these emerging therapies typically target very small patient populations, leading to significant challenges in the identification and enrollment of qualified patient participants. Biotech and pharmaceutical companies routinely reach out to patient advocacy groups, but don’t often know how best to support their efforts, or how to engage a diverse population of patients in the clinical trial development process.

In addition, the patient voice is often restricted to those who have the means to travel to academic research centers. Success in rare disease clinical trial enrollment and retention necessitates expanded access, more inclusive outreach strategies, and technology-driven solutions.

Join Lanya McKittrick – Chair of the Usher Syndrome Coalition and Founder, Hear See Hope Foundation; Steve Smith – President, Patient Advocacy, WCG; and Karmen Trzupek, M.S., CGC, Director of Clinical Trial Services, InformedDNA in a live webinar on Thursday, December 3, 2020 at 1:00PM EST.

For more information, or to register for this event, visit Engaging Diverse Patient Populations in Rare Genetic Disease Clinical Research.

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